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- CF is a life-threatening genetic disease that affects the lungs and digestive systems of approximately 30,000 children and adults in the United States.
- A defective gene causes the body to produce unusually thick, sticky mucus that clogs the airways and leads to life-threatening lung infections, obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food.
- More than 10 million Americans are unknowing, symptomless carriers of the defective CF gene.
- The disease occurs in one of every 3,500 live births of all Americans and about 1,000 new cases of CF are diagnosed each year.
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The Faces of Cystic Fibrosis |
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- Virtually every approved CF drug therapy available today was made possible because of the Foundation's support.
- The CF Foundation announced in 2008 that VX-770, an oral drug in development that targets a basic defect in CF, showed promising results in an ongoing Phase 2a clinical trial. The drug is being developed by Vertex Pharmaceuticals, Inc.
- Thanks to investments by the CF Foundation in CF research and care, the median predicted age of survival for people with the disease has doubled in the past 25 years---to nearly 37 years.
- Nearly 90 percent of every dollar of revenue raised is available for investment in vital CF programs to support research, care and education.
- The Foundation has been recognized by such publications as Forbes and SmartMoney for its innovation and efficiency.
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Time is precious. No one knows that more than people suffering with cystic fibrosis. Imagine not living long enough to see your children grow up. Time is not on our side.
We need research, donations, volunteers and most of all—your time. Our hero’s are people and organizations just like you. Your time creates more time for people battling cystic fibrosis.
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